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Simple Living
True Blue Farmgirl

1066 Posts

Joan
Staten Island NY
USA
1066 Posts

Posted - Feb 29 2016 :  6:44:26 PM  Show Profile  Reply with Quote
Hello farm sisters, I have chronic pain. I'm being evaluated for Fibromalgia. To me it is a scarey diagnosis. I would love to hear if there are other woman here that was diagnosed with this.


A Life Without a Friend, Is a Life Without Sun
Farmgirl #3842

RachelLeigh
True Blue Farmgirl

566 Posts

Rachel
Port Orchard WA
USA
566 Posts

Posted - Feb 29 2016 :  7:56:06 PM  Show Profile  Reply with Quote
I live with a different form of chronic pain (psoriatic arthritis), but my sister-in-law has Fibromylgia. She doesn't work full time because of it; she maintains part time and draws disability. She has good and bad days, and seems to have more days than not where she is just generally not feeling well and has to take things slowly. She's on several medicines to treat it, although I don't know which ones. I hope you get the answers you need and that you start to feel better!


Farmgirl Sister #5159
My blog: http://14thandoak.com
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Simple Living
True Blue Farmgirl

1066 Posts

Joan
Staten Island NY
USA
1066 Posts

Posted - Mar 01 2016 :  04:06:38 AM  Show Profile  Reply with Quote
Thank you Rachael. I also hope you and type sister in law aren't in too much pain.


A Life Without a Friend, Is a Life Without Sun
Farmgirl #3842
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Blessed in Colorado
True Blue Farmgirl

3723 Posts

Debbie L.
Colorado
USA
3723 Posts

Posted - Mar 01 2016 :  04:44:07 AM  Show Profile  Reply with Quote
I like Rachael have Psoriatic and Osteoarthritis and my hubby has Fibromyalgia, all caucuses chronic pain but Fibromyalgia causing the worse with good and bad days. We are on Lyrica which helps with the pain sometimes with little or no side effects for us. But, I do have friends who have side effects from the Lyrica. Good luck with your diagnosis Joan and I hope you get the help you need.


Hugs,
Deb
#1582
Blessed in Colorado

"You must do the thing you think you can not do." Eleanor Roosevelt

Women are Angels,and when someone breaks our wings We simply continue to fly on our Broomsticks. We're flexible like that.

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hudsonsinaf
True Blue Farmgirl

3047 Posts

Shannon
Rozet Wyoming
USA
3047 Posts

Posted - Mar 01 2016 :  04:52:49 AM  Show Profile  Reply with Quote
I have fibro... so do other Farmgirls on here. We are here for you!!!

~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/
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Simple Living
True Blue Farmgirl

1066 Posts

Joan
Staten Island NY
USA
1066 Posts

Posted - Mar 01 2016 :  05:08:13 AM  Show Profile  Reply with Quote
I can always depend on my farm sisters for comfort. . Thank you all


A Life Without a Friend, Is a Life Without Sun
Farmgirl #3842
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hudsonsinaf
True Blue Farmgirl

3047 Posts

Shannon
Rozet Wyoming
USA
3047 Posts

Posted - Mar 01 2016 :  05:23:52 AM  Show Profile  Reply with Quote
Joan - I'm not sure why the diagnosis scares you... For me, it was kinda a relief, just because I finally knew what my issue was ;) I very much live by the mindset that I will manage my fibromyalgia, and my fibromyalgia will NOT manage me! There are definitely days when it is worse... especially when storms are brewing or when I've done too much, especially when I'm pregnant. But for the most part, for me, it was just nice knowing WHY I hurt, tired, and didn't want to move! The other nice thing about the diagnosis was I had been seeing a chiropractor for years and there were always certain areas where she would push that I would leap out of my skin and tears would flow, but had no idea why as she kept telling me that nothing was out there... come to find out, she was pushing on trigger points that they use for diagnosing, lol. There are times my hubby still gets a couple of them when he is rubbing my lower back... oh the pain!

~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/
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Madelena
True Blue Farmgirl

1427 Posts

Mary
Central TX
USA
1427 Posts

Posted - May 05 2016 :  6:59:51 PM  Show Profile  Reply with Quote
I have heard a lecture by a nationally renowned doctor who strongly recommends a vegetarian diet. Preferably a well balanced Vegan diet for the autoimmune diseases.
He also mentions that milk products have high inflammation reactions and to cut them all out. Also chicken and eggs (who knew??). Also are problems.

Now I'm not a vegetarian or vegan-- but there was enough really good research provided that I'm a believer. Do your own research, and decide what works for you.
Meanwhile, I'm going to start working toward these same goals- and yes, there are several people in my family who have fibro---

"There is no unbelief: Whoever plants a seed beneath the sod and waits to see it push away the clod, he trusts in God." (Kate Douglas Wiggin)
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marjean
True Blue Farmgirl

3730 Posts

Marsha
Deltona FL
USA
3730 Posts

Posted - Jun 23 2016 :  1:48:31 PM  Show Profile  Reply with Quote
I suffered with pain from Fibromyalgia for 30 years after acute muscle injuries in both shoulders. It finally is gone! How? Glad you asked. My alternative health doctor worked on my bowel health and got the good flora balance back and the pain went away. He said in his 40 years of practice the pain comes from the bacteria in the gut. He was right.

In addition to that he recommended I get the grounding mat also known as earthing. He also recommends PEMF therapy which speeds healing and improves circulation in the entire body with a short 8 minute session. I use it now myself and it is wonderful. Check out my website in my signature line for more details on this wonderful pill free therapy. I have watched every video on YouTube about this PEMF and Bemer Bed. It is eye opening for sure. Hope it helps you and you get relief soon.

I'm always open for private email conversations if you ever have more questions about alternative treatment options.

Farmgirl sister #308
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Red Tractor Girl
True Blue Farmgirl

3832 Posts

Winnie
Gainesville Fl
USA
3832 Posts

Posted - Jun 24 2016 :  06:36:45 AM  Show Profile  Reply with Quote
Joan, I am sorry to hear that you have chronic pain. Hopefully, your physician will be able to get you stable so that you are able to feel better and keep up with what you enjoy doing. Everyone is different and it might take some time trying different things to find what will work best for you! Take care!!

Winnie #3109
Red Tractor Girl
Farm Sister of the Year 2014-2015
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Simple Living
True Blue Farmgirl

1066 Posts

Joan
Staten Island NY
USA
1066 Posts

Posted - Jun 24 2016 :  06:53:26 AM  Show Profile  Reply with Quote
Thank you all for the support


A Life Without a Friend, Is a Life Without Sun
Farmgirl #3842
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ceejay48
Farmgirl Legend/Schoolmarm/Sharpshooter

13257 Posts

CeeJay (CJ)
Dolores Colorado
USA
13257 Posts

Posted - Jul 25 2016 :  08:00:40 AM  Show Profile  Send ceejay48 a Yahoo! Message  Reply with Quote
Joan,
Peggy Smith, aka "LadyInRed" suffers with fibromyalgia as well. Perhaps she can offer some insights as well.
CJ

..from the barefoot farmgirl in SW Colorado...sister chick #665.
2010 Farmgirl Sister of the Year
Mother Hen: FARMGIRLS SOUTHWEST HENHOUSE

my aprons - http://www.facebook.com/FarmFreshAprons

living life - www.snippetscja.blogspot.com

from my heart - www.fromacelticheart.blogspot.com

from my hubby - www.aspenforge.blogspot.com
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Simple Living
True Blue Farmgirl

1066 Posts

Joan
Staten Island NY
USA
1066 Posts

Posted - Jul 25 2016 :  08:11:46 AM  Show Profile  Reply with Quote
I didn't realize how many people are diagnosed with this disease


A Life Without a Friend, Is a Life Without Sun
Farmgirl #3842
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blackantsnpeonys
True Blue Farmgirl

151 Posts

Denise
Hinckley Illinois
USA
151 Posts

Posted - Sep 10 2016 :  7:05:19 PM  Show Profile  Reply with Quote
I have fibromyalgia as well. One day at a time. I miss Peggy. Where is she?

Creative, spontaneous, artistic, adventurous, wife, mother, grandma! Up for just about anything. Enjoying life. Blessed.
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Blessed in Colorado
True Blue Farmgirl

3723 Posts

Debbie L.
Colorado
USA
3723 Posts

Posted - Sep 11 2016 :  07:01:02 AM  Show Profile  Reply with Quote
My hubby and I both have fibro on top of other diseases, we have good days and bad days. And yes we too take it one day at time! We try to keep moving, rest on the bad days and enjoy life as best we can on our good days!

Hugs,
Deb
#1582
Blessed in Colorado

FGOTM, Septembe, 2012

"You must do the thing you think you can not do." Eleanor Roosevelt

Women are Angels, and when someone breaks our wings We simply continue to fly on our Broomsticks. We're flexible like that!

http://shopus.longaberger.com/mountainwingslongabergerbaskets
http://myworld.ebay.com/debbt
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Beverley
True Blue Farmgirl

2699 Posts

Beverley
atlanta Michigan
USA
2699 Posts

Posted - Sep 11 2016 :  11:41:14 AM  Show Profile  Reply with Quote
I also have fibro, and I do not let it take over. I still try to do as much as I can. I just can not do things for as long as I used to. I have to give myself like one thing a day that I really need to get done besides the regular stuff. I too was finally glad to hear what it was I had. I had like ever symptom they say you can have with fibro and even my husband said, WOW, at least that explains things. I use a muscle relaxer ever night before bed. My muscles just do not want to relax on their own. I think the nerve endings they talk about that are always firing keep my muscles tense. So, it is much better when I take the muscle relaxer. although if I have over done, oh man does it hurt to force them to relax. So, I do what I can. Sometimes I can not tell if it the fibro or just that I am getting older, that I can not do like I used to. But, I keep plugging!! That's all you can do!

Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
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BellaSticks
True Blue Farmgirl

82 Posts

Nicole
Central Illinois
USA
82 Posts

Posted - Sep 14 2016 :  6:28:56 PM  Show Profile  Reply with Quote
Hi Joan. I also have fibromyalgia and endometriosis. I've struggled for years and am finally starting to get some control over the pain. Part of it was adjusting my expectations to a "new normal" and learning how much pain I can tolerate living with. Meeting with a therapist to work through some depression and anxiety I felt when I was diagnosed really made a difference for me early on. I've been very fortunate with being able to manage my symptoms by following a diet for autoimmune diseases and beginning Iyengar Yoga. It took years of trying different things and new medications to figure out what works for me (and some days even those things don't work). A lot of people have a hard time understanding what it's like to live with a chronic illness, it's wonderful to see such a supportive group of women here to talk about this disease and how we cope with it!

Nicole
Farmgirl #6762
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NikisMom
True Blue Farmgirl

140 Posts

Julie
Framingham MA
140 Posts

Posted - Sep 18 2016 :  1:39:49 PM  Show Profile  Reply with Quote
Hi Joan, I was diagnosed with fibromyalgia over 15 yrs ago. I have good days and bad, several things that help me are yoga/stretching and taking magnesium. Both were recommended by my neroligist.
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melody
True Blue Farmgirl

3222 Posts

Melody
The Great North Woods in the Land of Hiawatha
USA
3222 Posts

Posted - Oct 29 2016 :  10:08:39 AM  Show Profile  Reply with Quote
I will finally go in to see a rheumatologist on Monday to determine if I too, have fibromyalgia-We do not have the luxury of having a specialist here in town so it will be a good long drive. I have been subjected to a 'slew' of tests for the past 2-1/2 months because of chronic deep muscle/joint pain that I have been enduring for about 8-months and more-The aching never stops-day and night. It was determined two months ago that my Vit D is in the tank so my GP prescribed mega doses once a week and just this past week daily d as well. OTC pain medications do absolutely nothing for me-It is very frustrating and interferes with my daily activities greatly.

I'm not nervous about my visit--just a little anxious about 'breaking' in a new Dr. who doesn't know me as well as my GP. Besides, I will finally know what the heck is going on.

Melody
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LadyInRed
True Blue Farmgirl

6174 Posts

PeggyAnn
Vancouver WA
USA
6174 Posts

Posted - Oct 30 2016 :  1:05:30 PM  Show Profile  Send LadyInRed a Yahoo! Message  Reply with Quote
I have had diagnosed Fibro for 15 years. I have learned
To live with next to no medication because all the
Medications have far worse side effects than I was willing
To risk! I have all over body Fibro with Chronic Fatigue and
3 different Arthritis. It seemed like a Life Sentence when I was
First diagnosed but I (with God's help) have learned how
To deal with it. I had to take Medical Disability but you can learn
To live with more pain than you think you could ever possibly
Endure!

Hugs and Prayers,
Peggy

Farmgirl #1326
Dec 2011-Farmgirl of the Month
http://ladyinredsite.blogspot.com

Don't allow others to steal the Glitz from your *SPARKLE*

Life is too short to knit with ugly yarn!

Leave Your Cares Behind...Join Us On The Porch

Edited by - LadyInRed on Oct 30 2016 1:10:04 PM
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Blessed in Colorado
True Blue Farmgirl

3723 Posts

Debbie L.
Colorado
USA
3723 Posts

Posted - Oct 30 2016 :  2:00:05 PM  Show Profile  Reply with Quote
Melody, I too have Fibromyalgia as well as my husband who has it much worst than I do. It can be quite debilitating at times, on the bad days we rest, thank goodness right now I have more good days, but not my hubby:-(
We both take 300 mg a day of Lyrica with no side effects, it helps me more than hubby. But, my hubby is 100% disabled and he has many more diseases that also causes 24/7 pain!
We also take another pain med with our Lyrica, it helps me fight through the pain better.
Now I do know that some folks can not tolerate Lyrica
and have bad side effects.
And get this, Peggy who is an expert by the way on Fibromyalgia said she believed I had fibromyalgia long before I was finally diagnosed by my doctor! So, listen to my Dear Friend.
Good Luck Mel and I hope you find the right treatment to help you.


Hugs,
Deb
#1582
Blessed in Colorado

FGOTM, Septembe, 2012

"You must do the thing you think you can not do." Eleanor Roosevelt

Women are Angels, and when someone breaks our wings We simply continue to fly on our Broomsticks. We're flexible like that!

http://shopus.longaberger.com/mountainwingslongabergerbaskets
http://myworld.ebay.com/debbt

Edited by - Blessed in Colorado on Oct 30 2016 2:02:00 PM
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melody
True Blue Farmgirl

3222 Posts

Melody
The Great North Woods in the Land of Hiawatha
USA
3222 Posts

Posted - Oct 30 2016 :  2:07:23 PM  Show Profile  Reply with Quote
Thanks Deb!

I am taking notes for my visit with the rheumatologist---I've heard of Lyrica. Just want something to take this blasted aching away-I've been using a heating pad all weekend long for deep shoulder pain. Taking Tylenol and Meloxicam and it's not doing a darn thing. Ugghhh. I let you know how the visit goes.

Mel
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Kangaroo Kate
True Blue Farmgirl

253 Posts

Teresa
Red Oak Texas
USA
253 Posts

Posted - Oct 30 2016 :  2:17:05 PM  Show Profile  Reply with Quote
one suggestion you might try
CBD oil tincture different from smoking "weed"
it is the pure oil from the plant and has many
medicinal benefits. you do not get the "High"
I had fallen 3 times and damaged my left hand bad
got some nerve damage lot of pain
I got the CBD oil and got some relief and then was
able to do the therapy I needed. I believe the
oil helped It is legal in all 50 states. look it up
on line. I know it helped the nerves in my hand and
arm when I took it. I make it part of my daily
supplement routine.

Teresa
kangaroo kate Sister #1506


Dance Like No One Is
Watching.
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Blessed in Colorado
True Blue Farmgirl

3723 Posts

Debbie L.
Colorado
USA
3723 Posts

Posted - Oct 30 2016 :  5:25:53 PM  Show Profile  Reply with Quote
Oh yes Teresa, I have tried the low dose for my hubby, it did nothing for his pain. But, with that being said due to his Severe pain we are going to the highest dose of CBD as we know it will help, as we by have seen fabulous results for our friends.
Just a thought on another option! It is very expensive but if will help my husband to relieve some or all his pain that he has had for years than it is well worth the expense. Plus if he can get off the pain drugs when it helps him, then we will find a way to pay for it!

Hugs,
Deb
#1582
Blessed in Colorado

FGOTM, Septembe, 2012

"You must do the thing you think you can not do." Eleanor Roosevelt

Women are Angels, and when someone breaks our wings We simply continue to fly on our Broomsticks. We're flexible like that!

http://shopus.longaberger.com/mountainwingslongabergerbaskets
http://myworld.ebay.com/debbt
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LadyInRed
True Blue Farmgirl

6174 Posts

PeggyAnn
Vancouver WA
USA
6174 Posts

Posted - Oct 31 2016 :  10:23:26 AM  Show Profile  Send LadyInRed a Yahoo! Message  Reply with Quote
Deb, Melody and Teresa ...
Is CBD the same as Cannabis Oil Capsules? I tried them and had no Fibro pain on the week I took them but found out that I am allergic to
Cannabis. Some one told me that there is a purer form that might not bother me...is that what you are talking about? I would love to be able
To feel that good again...but it swelled my tongue to the point I had to stop or not be able to swallow.

See, we can all learn from each other. Glad that CJ told me about this Thread.

Hugs,
Peggy

Farmgirl #1326
Dec 2011-Farmgirl of the Month
http://ladyinredsite.blogspot.com

Don't allow others to steal the Glitz from your *SPARKLE*

Life is too short to knit with ugly yarn!

Leave Your Cares Behind...Join Us On The Porch
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Blessed in Colorado
True Blue Farmgirl

3723 Posts

Debbie L.
Colorado
USA
3723 Posts

Posted - Oct 31 2016 :  8:17:42 PM  Show Profile  Reply with Quote
Yes Peggy CBD is the cannabis! We use the lotion and like it better. Truly great for the pain!


Hugs,
Deb
#1582
Blessed in Colorado

FGOTM, Septembe, 2012

"You must do the thing you think you can not do." Eleanor Roosevelt

Women are Angels, and when someone breaks our wings We simply continue to fly on our Broomsticks. We're flexible like that!

http://shopus.longaberger.com/mountainwingslongabergerbaskets
http://myworld.ebay.com/debbt
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