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 RSD/CRPS
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farmgirl68
True Blue Farmgirl

369 Posts

Katie
Bangor Pennsylvania
USA
369 Posts

Posted - Jul 29 2017 :  06:24:13 AM  Show Profile  Reply with Quote
I was wondering if any other farmgirls suffer from RSD and what treatments they have tried.

For those of you who may not know what RSD (Reflex Sympathetic Dystrophy) is, it is a brutal pain condition that affects the sympathetic nervous system. It usually comes with a slew of co-morbid conditions and is progressive. There is no "cure".

Anyway, if you have it like I do, I'd love to know what you are trying or what you have tried.

Thanks and soft hugs!

Katie #7422
Friends are the flowers that bloom in life's garden.

ceejay48
Farmgirl Legend/Schoolmarm/Sharpshooter

13227 Posts

CeeJay (CJ)
Dolores Colorado
USA
13227 Posts

Posted - Jul 29 2017 :  06:29:00 AM  Show Profile  Send ceejay48 a Yahoo! Message  Reply with Quote
HI Katie,
I've never heard of RSD and it sounds like it's a terrible thing to deal with. I have nothing to offer but prayers for you!
I'm dealing with my own stuff which has been long-running and without resolution, so I understand chronic illness!

PRAYING!
HUGS . . soft one back!
CJ






..from the barefoot farmgirl in SW Colorado...sister chick #665.
2010 Farmgirl Sister of the Year
Mother Hen: FARMGIRLS SOUTHWEST HENHOUSE

my aprons - http://www.facebook.com/FarmFreshAprons

living life - www.snippetscja.blogspot.com

from my heart - www.fromacelticheart.blogspot.com

from my hubby - www.aspenforge.blogspot.com

Edited by - ceejay48 on Jul 29 2017 06:29:29 AM
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farmgirl68
True Blue Farmgirl

369 Posts

Katie
Bangor Pennsylvania
USA
369 Posts

Posted - Jul 29 2017 :  06:45:36 AM  Show Profile  Reply with Quote
Prayers back to you CeeJay. It's a tough road but farmgirls are tough!

Katie #7422
Friends are the flowers that bloom in life's garden.
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1Anne
True Blue Farmgirl

77 Posts

Anne
Lebanon CT
USA
77 Posts

Posted - Aug 09 2017 :  8:55:49 PM  Show Profile  Reply with Quote
Katie - I have had acute RSD twice. The second time I was on crutches for 7 months. I couldn't put any weight on my foot unless I was in a swimming pool at therapy. If you touched my foot, it felt like you plugged me into an electric socket. Water currents hurt -> no bath; air currents hurt -> several layers of socks; and my foot was frozen all the time. Cymbalta was the drug that helped me manage the pain so I could do therapy. Therapy is critical to recovery and unfortunately it's very painful. The brain has to re-learn the normal sensations of using your leg or arm, which ever is affected. For me, therapy included a fan blowing on my foot, rubbing various textures (soft, sandpaper, etc) on the foot, and learning to walk through the pain. I recovered without muscle atrophy and now jog several miles a day. I thank God for my recovery. Not sure where you are in your process. Let me know if you have any questions. My heart goes out to you. Anne




Yes, in God I trust.
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prariehawk
True Blue Farmgirl

2914 Posts

Cindy

2914 Posts

Posted - Aug 09 2017 :  9:20:57 PM  Show Profile  Reply with Quote
I know someone who has it. Prayers to you.
Cindy

"Come by the hills to the land where fancy is free; And stand where the peaks meet the sky and the rocks reach the sea.Where the rivers run clear and the bracken is gold in the sun. and cares of tomorrow must wait till this day is done"--Loreena McKennit
"In many ways, you don't just live in the country, it lives inside you"--Ellen Eilers

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farmgirl68
True Blue Farmgirl

369 Posts

Katie
Bangor Pennsylvania
USA
369 Posts

Posted - Aug 10 2017 :  04:46:58 AM  Show Profile  Reply with Quote
Thank you ladies. I have progressed, unfortunately, to "phase III" since they didn't catch it soon enough. They ran through any other diagnosis first, docs around here just didn't know. Finally my neurologist referred me to a specialist in Philadelphia. The waiting list was 3 years but I got in on a cancellation. I garden, on my good days, for my therapy and it works wonders. It doesn't take away the pain just offers an excellent distraction; one where I'm willing to work through the awful pain.

BTW - the reason I usually post in orange is because it is the color of RSD/CRPS awareness. November is RSD/CRPS awareness month so I may be posting some info during that time.


Katie #7422
Friends are the flowers that bloom in life's garden.
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1Anne
True Blue Farmgirl

77 Posts

Anne
Lebanon CT
USA
77 Posts

Posted - Aug 11 2017 :  08:48:43 AM  Show Profile  Reply with Quote
Katie, prayers are going out for you. Anne




Yes, in God I trust.
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farmgirl68
True Blue Farmgirl

369 Posts

Katie
Bangor Pennsylvania
USA
369 Posts

Posted - Aug 11 2017 :  09:58:20 AM  Show Profile  Reply with Quote
Thank you, Anne

Katie #7422
Friends are the flowers that bloom in life's garden.
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1Anne
True Blue Farmgirl

77 Posts

Anne
Lebanon CT
USA
77 Posts

Posted - Aug 13 2017 :  11:29:28 AM  Show Profile  Reply with Quote
Katie, I didn't know there was an awareness month for RSD. So important for folks to get diagnosed early and treated. I can't fathom a 3 year waiting list for a specialist. Please feel free to enlighten us with info on RSD during the awareness month - you never know who can be helped with such info. I love your orange pen - orange just happens to be my favorite color!!! :-) Anne




Yes, in God I trust.
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farmgirl68
True Blue Farmgirl

369 Posts

Katie
Bangor Pennsylvania
USA
369 Posts

Posted - Aug 14 2017 :  02:32:24 AM  Show Profile  Reply with Quote
Many areas celebrate in different ways, for instance, Niagara Falls, lights up orange on Awareness Day.

Katie #7422
Friends are the flowers that bloom in life's garden.
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